Event Date: Oct 05, 2016

Related Resources l Recording

12:00 pm - 1:30 pm EDT

Dementia not only affects adults later in life but people in their 40s and 50s.  A diagnosis under the age of 65 is commonly referred to as “young onset”.  People living with young onset dementia have unique challenges compared with those diagnosed later in life.  This ground breaking webinar is your opportunity to hear directly from two women living with young onset dementia about their experiences working with the health care system – both challenges and successes.  Facilitated by Dr Carole Cohen, geriatric psychiatrist, and featuring Faye Forbes and Mary Beth Wighton, you will hear firsthand their lived experiences and learn tips on how you can improve your care of people with young onset dementia.

This event is not to be missed!  We hope you can join us!

This integrated KTE webinar event is brought to you by brainXchange in partnership with the Alzheimer Society of Canada and the Canadian Consortium of Neurodegeneration in Aging (CCNA)



Reverend Faye Forbes

Rev’d Faye Forbes is a person living with dementia.  Since she was diagnosed 5 years ago, she has become an advocate for those living with this disease and is active with the Alzheimer Societies.  She was an advisory member for the Nova Scotia Dementia Strategy, Committee; member for the Dementia Friends Initiative; speaker at several conferences, including the G7 Global Action against Dementia; collaborated on an article for the Canadian Journal of Geriatric Medicine, member of the Alzheimer Society of Canada Board of directors and continuing speaking engagements.  

As well as living with dementia, she has had experience in care giving to her grandfather and mother-in law. 

She is an Associate Priest at St Francis by the Lakes Anglican Church where she is active in educational and sacramental ministry.

Mary Beth Wighton,  Advocate - Ontario Dementia Advisory Group – Founding Board Member

Mary Beth Wighton was diagnosed in 2012 with probable frontotemporal dementia at the age of 45. She is an advocate for people living with dementia from the local to international level. Mary Beth promotes and uses technology, such as internet video conferencing, to involve people with dementia who may be challenged by issues like transportation and anxiety. She is a founding member of the Ontario Dementia Advisory Group (ODAG) which is an exclusive group for people with dementia living in Ontario. Its focus is government policy, education and challenging stigma. In addition, she is a member of the Advisory Group for the development of Ontario's dementia strategy and its Moderate Stage working group.  Just this past year she was a Witness for the Canadian Standing Senate Committee on Social Affairs, Science and Technology for its study on dementia in Canadian. ODAG gained international notoriety by its use of the United Nations Convention on the Rights of Person with Disabilities accessibility article to obtain a number of accommodations from the government. 

Recently, Mary Beth became a founding member of the Canadian Dementia Working Group Task Force who submitted a Memorandum to the United Nations as it relates to “Concluding Observations” report from the United Nations to Canada.

Dr. Carole A. Cohen

Carole Cohen is a geriatric psychiatrist and a Professor in the Department of Psychiatry at the University of Toronto.  She is Clinical Director of the Community Psychiatric Services for the Elderly at Sunnybrook Health Sciences Centre. This inter-professional team provides assessment and management of seniors with mental health and addictions problems (including dementia) in their place of residence. Dr. Cohen is a consultant to the Capacity Assessment Office of the Ministry of the Attorney General of Ontario and member of the Canadian Dementia Priority Setting Partnership Steering Group. Dr. Cohen teaches at the University of Toronto medical school and supervises psychiatry residents in their geriatrics rotation.