Young Onset Dementia

New Podcast Series: Young Onset Dementia

In partnership with Dementia Dialogue, brainXchange is proud to announce that we have produced a podcast series about Young Onset Dementia. Through this series we talk to people living with early onset dementia, care partners including spouses and young adult children and a geneticist who describes the genetics of young onset dementia and the process for genetic testing. We hope that by listening to the episodes, you will gain new insights and be moved by their stories, as we were.

• ​​Episode One: Young Onset Dementia: One family's story on how a diagnosis impacted their lives (Part I)
• Episode Two: Young Onset Dementia: One family's story on how a diagnosis impacted their lives, the children's perspectives (Part 2)
• Episode Three: Young Onset Dementia: Changing the Narrative
• Episode Four: Young Onset Dementia: ”Have a Good Day, Every Day”
• Episode Five: Young Onset Dementia: Facing a Family History

Presentations

• The importance of Social programs for People Living with Young Onset Dementia (slides), Presenter: Romina Oliverio, Community Partnerships Manager at the Alzheimer Society of Toronto (AST)
• Living with Young Onset Dementia – Let’s have a conversation! Presenters: Reverend Faye Forbes; and Mary Beth Wighton,  Advocate, Ontario Dementia Advisory Group, Founding Board Member

Resources

• A personal symptom checklist for young onset dementia, Alzheimer Society
• Life with Young Onset Dementia: What You Need to Know, Blog, Alzheimer Society of Ontario
• Young Onset Dementia, Alzheimer Society of Canada
• Young Onset Dementia: Facilitators Resource Manual, Alzheimer Society of Canada
• Young Onset Dementia Information Gap Analysis: Executive Summary, Alzheimer Society of Canada
• Young Onset Dementia Information Gap Analysis: Report, Alzheimer Society of Canada
• Young Onset Dementia: An inspirational guide for people like us with early-stage memory loss, Research Institute for Aging  and Murray Alzheimer Research and Education Program 
• YouQuest, provides practical support in a community setting

 

International 

• I have younger onset dementia, Dementia Australia
• Young-onset dementia, Alzheimer's Society UK
• Younger people with dementia: Living well with your diagnosis, NHS Health Scotland
• Young-onset dementia and the need for specialist care: a national and international perspective,University College London, UK
• Young-onset dementia in mental health services, Royal College of Psychiatrists, Scotland
• Young onset dementia: Internal Medicine Journal, Dementia Collaborative Research Centre, Australia
• The Young Dementia Network, UK
• What is young onset dementia? Alzheimer Society UK

 

Videos:

• Changing the stories we tell about young onset dementia,  Alzheimer Society
• Three real-life perspectives about young onset dementia, Alzheimer Society
• What is young onset dementia?, Alzheimer Society
• Much Too Young, TVO Documentary

Related Topics

• Young Carers Resouces on the Caregiver Support and Education Resource Page