brainXchange Webinar

Event Date: Jun 25, 2013



Recording | Related Resources

Learnings from the National Population Health Study of Neurological Conditions: Part III - Understanding from Within: Developing Community-Driven and culturally Relevant Models for Understanding and Responding to Neurological Conditions among Aboriginal Peoples

Dr. Carrie Bourassa, Associate Professor of Indigenous Health Studies at First Nations University of Canada discusses the “Understanding from Within” (UFW) project, which was part of the National Health Population Study of Neurological Conditions (NHPSNC). The UFW research team, with the guidance of their Advisory Committee, used a narrative approach to gather and analyse qualitative stories from Aboriginal women who live with a neurological condition, their caregivers, and key informants. Specifically from the NHPSCN’s goals, the UFW project aimed to bring forth Aboriginal women’s stories of the impacts of neurological conditions on themselves and their families, any gaps in related health services or policies, and risk and protective factors related to neurological conditions.

Dr. Tanya Packer, Professor and Director of the School of Occupational Therapy, Dalhousie University and her colleague Dr. Joan Versnel, Assistant Professor in the School of Occupational Therapy, Dalhousie University addressed the LINC study, which was part of the National Population Health Study of Neurological Conditions (NPHSNC).  They presented key findings of the study including how a neurological condition impacts on participation in everyday life.

The National Population Health Study of Neurological Conditions is a five-year study (2009-2014) that is expected to provide data on the scope, risk of onset and prognostic factors, health service utilization and the current and projected impact of neurological conditions over the next five, 10 and 20 years. In collaboration with Neurological Health Charities Canada (NHCC) and the Public Health Agency of Canada, this national Study is aimed at filling in gaps in knowledge about the state of neurological conditions in Canada. This multifaceted project consists of three national surveys, thirteen Pan Canadian peer-reviewed research studies and a micro-simulation project before concluding with a Synthesis Process.

 

Related Documents:

Presenter(s):

Dr. Carrie Bourassa, Associate Professor of Indigenous Health Studies at First Nations University of Canada, Regina and Dr. Tanya Packer, Professor and Director of the School of Occupational Therapy, Dalhousie University