brainXchange Webinar

Event Date: Apr 11, 2013



Recording | Related Resources

Learnings from the National Population Health Study of Neurological Conditions: Registry Implementation and Guidelines

The National Population Health Study of Neurological Conditions (the Study) is a five-year Study (2009-2014) that is expected to provide data on the scope, risk of onset and prognostic factors, health service utilization and the current and projected impact of neurological conditions over the next five, 10 and 20 years. In collaboration with Neurological Health Charities Canada (NHCC) and the Public Health Agency of Canada, this national Study is aimed at filling in gaps in knowledge about the state of neurological conditions in Canada. This multifaceted project consists of three national surveys, thirteen Pan Canadian peer-reviewed research studies and a micro-simulation project before concluding with a Synthesis Process.

This presentation will provide a full overview of the study including an introduction to the work being done, how the various projects fit into the specific themes and how NHCC will use this information moving forward.

There will be a further discussion on the registry's use and designs, the Neurological Registry Best Practice Guidelines and Implementation Toolkit and an introduction to the Canadian Registry Network.

This event took place on April 11, 2013.  Click on the link below to watch a recording of this webinar:  Learnings from the National Population Health Study of Neurological Conditions: Registry Implementation and Guidelines from CDRAKE on Vimeo.
 

Related Documents:

Presenter(s):

Celina Rayonne Caesar-Chavannes, Director of Research Initiatives with Neurological Health Charities Canada (NHCC) & Dr. Lawrence Korngut, neurologist at the Calgary Neuromuscular Clinic and Director of the Calgary ALS and Motor Neuron Disease Clinic.