Developing disease definitions for neurological conditions (dementia, epilepsy, and parkinsonism)

brainXchange Webinar

Event Date: Jul 25, 2013

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Learnings from the National Population Health Study of Neurological Conditions: Part IV: Developing disease case definitions for three chronic neurological conditions (dementia, epilepsy, and parkinsonism)

Dr. Tyler Williamson explains the Canadian Primary Care Sentinel Surveillance Network (CPCSSN) and how CPCSSN is contributing to the National Population Health Study on Neurological Conditions (NPHSNC). CPCSSN is Canada’s first national chronic disease surveillance system built on electronic medical record (EMR) data. Through the process of this portion of the study, the CPCSSN study team has been able to develop disease case definitions for three chronic neurological conditions (dementia, epilepsy, and parkinsonism). These case definitions allow the CPCSSN team to study the prevalence of these three conditions in primary care setting but also permit ongoing surveillance and research into these conditions.

The National Population Health Study of Neurological Conditions is a five-year study (2009-2014) that is expected to provide data on the scope, risk of onset and prognostic factors, health service utilization and the current and projected impact of neurological conditions over the next five, 10 and 20 years. In collaboration with Neurological Health Charities Canada (NHCC) and the Public Health Agency of Canada, this national Study is aimed at filling in gaps in knowledge about the state of neurological conditions in Canada. This multifaceted project consists of three national surveys, thirteen Pan Canadian peer-reviewed research studies and a micro-simulation project before concluding with a Synthesis Process.