Event Date: Jan 23, 2012
Generate new insights and knowledge about the disease and the particular needs of the CJD-patients and their family throughout the continuum of care.
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This event took place on January 23rd, 2012. Click on the link below to watch a recording of this webinar: ABCD of CJD: The big picture of Creutzfeldt-Jakob disease
Creutzfeldt-Jakob disease (CJD) is a rare degenerative brain disease that is incurable, transmissible, and always fatal. The causal agent is believed to be a misfolded protein, called a prion. Prion diseases can affect humans as well as animals. Thus, in the 1980’s the “mad cow disease” epidemic in the United Kingdom created awareness about prion diseases worldwide. The Alzheimer Society of Canada provides support and information to people with all types of dementia, including Creutzfeldt-Jakob disease. Would you feel prepared to answer their questions if someone would contact you?
The purpose of this webinar is to increase awareness about Creutzfeldt-Jakob disease. It will generate new insights and knowledge about the disease and the particular needs of the CJD-patients and their family throughout the continuum of care.
Rolande D’Amour is a nurse consultant at the Creutzfeldt-Jakob disease Surveillance System of the Public Health Agency of Canada. Her responsibilities include: case-management of persons with suspect CJD and providing outreach activities and continuing education to the public and health care providers throughout the continuum of care.
In June 2009, Rolande completed her Master’s in Nursing at the University of Ottawa, where her design intervention was to: Create and evaluate an educational module on Creutzfeldt-Jakob disease for nurses and other health care professionals with participants from the Alzheimer Society of Canada.
Rolande has a passion for nursing, and says CJD patients are her work and also her cause. By talking about CJD we create more awareness about this patient population which can help decrease the stigma and fear of prion diseases, as well as improve our practice so that the clients and their family/care-giver receive better care. Rolande hopes that her continuing education sessions will provide a learning experience and will bring a sense of a job well done the next time someone contacts you for information about Creutzfeldt-Jakob disease.
Presenter(s):Rolande D'Amour (RN, BScN, MScN), Nurse-consultant, Creutzfeldt-Jakob Disease Surveillance System, Public Health Agency of Canada