How Can You Join the Conversation?

Lived Experience Network - South East Ontario Advisory Zoom Chats

You’re invited to join us via Zoom for an Advisory Lived Experience chat. These advisory conversations build an ongoing and sustainable communication bridge that will facilitate active and meaningful participation of persons with lived and living experiences across South East Ontario and those developing, providing and evaluating services for people impacted by dementia and similar diagnoses across the entire continuum of care.
Our Lived Experience Facilitator, Sharon Osvald, will guide these conversations. If you haven’t already signed up for our e-newsletter, you can do so by clicking here.

Thank You!
A big thank you to all the participants who have shared their insights in our advisory Lived Experience Network conversations - both in our Zoom meetings and through your emails and phone calls.

Be sure to read the Winter Lived Experience Perspectives e-newsletter for a summary of those conversations and the most recent information. This and all past conversation summaries are available on our “Lived Experience Perspectives” page.
 

February 2026 Advisory Conversation Topic: Barriers to Participation

February’s Lived Experience conversation topic came from several of our community supports services partners, including the Alzheimer Society of Kingston Frontenac Lennox & Addington.
They have shared that despite their members expressing interest in different programs, activities, education, and events, they often find themselves unable to participate. Come prepared to share some of your observations, suggestions for change, and the barriers you face/have faced that have kept you from participating – both from the perspective of the person living with dementia (or similar diagnosis) and family/friend care partner.


Choose the Meeting Date that Works for You:

Advisory Zoom Meeting Dates:

Date: Monday, February 9, 2026
Time: 6:00 PM – 7:30 PM
OR
Date: Monday, February 23, 2026
Time: 1:00 PM – 2:30 PM

Zoom Link and Info:
*Attention: This is a brand-new Zoom link for 2026. Be sure to use this link and delete all former links.

Join Zoom Meeting: https://us06web.zoom.us/j/9467547418?omn=87094436359

Meeting ID: Meeting ID: 946 754 7418

Prefer to call in? Dial:
  • 1 (204) 272-7920 or 1 (439) 809-7799
  • Then enter Meeting ID: Meeting ID: 946 754 7418
​If you experience any technical issues, email Kim at schrybuk@providencecare.ca or call 613-285-4802.
While registration isn’t required, it is appreciated and helps us provide better support and a meeting agenda. If you wish to contribute, but cannot attend the Zoom meetings, email your responses and observations to Lived Experience Facilitator, Sharon Osvald at sosvald@alzking.com

Please read before joining:

Lived Experience Network South East Ontario – Approach to Engagement

Meeting Expectations: Lived Experience Network South East Ontario advisory meetings will be a safe and confidential space where participants are treated with respect and courtesy.
  1. Swearing, name-calling, aggressive language or assigning blame are not welcome.
  2. Participants will be provided equal time to share their responses.
  3. Participants will attempt to share feedback that relates primarily to the advisory topic to ensure everyone has an opportunity to share.
  4. Participants will respect each other’s privacy and confidentiality. Participants are asked not to share personal information discussed in advisory chats. The Lived Experience Facilitator will provide a summary with anonymized quotes to protect the privacy of both the advisors and community partners.
To protect everyone’s privacy, please do NOT share:
  1. The names of staff or organizations when sharing your lived experience feedback.
  2.  The full names of the people you are supporting.
  3. Any personal health information (yours or others).
  4. Your last name. Please only list your first name under your video. Reach out to the Lived Experience Facilitator if you need help with this.
 
Our Role: The role of the Lived Experience Network South East is to host intentional advisory conversations with health care and community support leaders about improving the lived experiences of people living with dementia and similar diagnoses and their care partners across our region. Although, the Lived Experience Network provides support and information to our participants, we are not a support group.

We understand advisory stories shared will not always be positive. We invite you to share your lived and living experiences, ideas for necessary change, along with examples of good care in action through a lens of hope.  We act as advisors with the goal of enhancing the system of care by sharing our lived experience perspective. 
We are not an ombudsman; we do not and cannot directly lobby or act on behalf of individual members and their experiences. Our role is to report to the health care and community supports system, rather than report on it, acting as a safe place to bring questions and engage in active collaboration with those who want to hear honest feedback, shared in a healthy, hopeful, and productive manner.

While we acknowledge the value and importance of advocacy, we are an advisory group, not an advocacy group. We collect lived and living experience feedback distribute it in quarterly reports called Lived Experience Perspectives and, on our website, so others can implement that advice or share as experience-based perspectives
when advocating for change.

Our goal is: Exchanging Knowledge, Partnering for Change.

We are happy that you have joined us. We believe to create meaningful services and supports, the voice of those using these services must be heard. Thank you for being a part of that voice today.

Want to Share Your Lived Experience?

Come to our next Zoom Chat or contact Sharon Osvald:
📧 sosvald@alzking.com
📞 (343) 645-6240
 

Looking Ahead

The Lived Experience Network will host six Zoom Advisory conversations a year—in February, April, May, September, October, and November. Each topic will be discussed in both an afternoon and an evening session.

Feedback from these conversations will be compiled into a quarterly report called Lived Experience Perspectives and shared confidentially with Lived Experience Network participants and health care and community support partners to support planning, service delivery, and system evaluation.