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Lived Experience Network South East Ontario Advisory Zoom Chats

We invite you to join us for the Advisory Lived Experience Zoom chat/conversation. Advisory Lived Experience Zoom Chats/Meetings provide a way for health care system leaders, who plan, assess and provide service to people living with dementia or similar diagnoses in South East Ontario to receive advice and observations from people with lived experience (past and present) with the purpose of improving the system of care. Lived Experience Facilitator, Sharon Osvald will facilitate these Advisory conversations.
 
If you have not already signed up for this e-newsletter, please join via the following link: https://mailchi.mp/brainxchange/lense
 

Dates & Times:

To accommodate as many people as possible, we have set up two dates to discuss the same topic. One is in the evening, and one is in during the day.
  • Monday, April 7th Evening Zoom Chat from 6:00 - 7:30 PM (ET)       OR
  • Monday, April 14th Daytime Zoom Chat from 1:00 - 2:30 PM (ET)

April’s topic:

Enhancing Care Program


April’s question comes from Philip Ambury, Community Team Manager, Providence Care Community Seniors Mental Health Behavioural Support Services HPE and FLA.

Enhancing Care for Ontario Care Partners helps care partners across Ontario manage the stress and complexities of caring for persons living with dementia. Developed by the Reitman Centre, Sinai Health – this provincial program is funded by Ontario Health Toronto, and provided in the Southeast region by Providence Care’s Seniors Mental Health Behavioural Support Services.

TEACH is an interactive group for care partners of a person living with dementia. Care partners may discuss themes such as self-care and future planning while learning from each other. Care partners will receive coaching in practical communication and coping skills and have the opportunity to share and learn from each other. Referrals are offered on a self-referral basis. Common caregiving themes include Self-Care, Healthcare System Navigation, Relationship Changes and Future planning.

Recognizing the challenges care partner’s experience in receiving education, this month’s topic focuses on when this training program would be most helpful in your caregiving journey.

To ensure promotion and recruitment for this program is as effective as possible, Phil has come to the Lived Experience Network South East with this question:

At what stage in your caregiving journey would this information be the most helpful?
  • Self-Care
  • Healthcare System Navigation
  • Relationship Changes
  • Future planning
  • Coaching for Practical Communication and Coping skills
 Click the link to learn more about Enhancing Care Program
https://providencecare.ca/community-services/behavioural-support-services/
 
 Zoom Link and Info:

Join Zoom Meeting Room: https://zoom.us/j/3960785979?omn=93074666806

Meeting ID: 396 078 5979

If you are unable to attend online, but wish to phone in, please dial one of the following numbers:
1 (647) 374 - 4685 or 1 (647) 558 - 0588  You will be asked to enter the Meeting ID # 396 078 5979

(Please note this is a different Zoom link and Meeting ID than we have used in past meetings.)

If you experience technical difficulties when trying to join either of these Zoom meetings, please email Kim at schrybuk@providencecare.ca or call 613-285-4802 for support.
 
The Lived Experience Network South East will hold six virtual advisory conversations a year through Zoom. These Zoom chats/meetings will take place on both a Monday evening and afternoon (with the same topic for both meetings) in the months of February, April, May, September, October and November. Input and suggestions for change will be shared with healthcare professionals providing, planning and evaluating services across the system of care through a quarterly report, in a manner that is confidential and protects your privacy.

Please let us know if you can come, and which date you plan to attend. While it is not mandatory to register, it is very helpful when providing technical assistance, if we have an idea ahead of time of who is coming and so we can provide you with a meeting agenda.

Advisory Lived Experience Zoom Chat Policy

Please read before joining our Zoom call: 

Although, some of our stories are not positive/happy stories, this community is not simply a place to voice our complaints. The Lived Experience Network cannot act as an ombudsman, rather, it is a safe place to share our stories through the lens of hope with the aim of sharing our lived experiences and making things better for others.
  1. Please do not use full names of the people you support. Do not use real names of medical staff, volunteers or the names of hospitals, long term care homes services or organizations. Please keep your comments as general as possible to protect the privacy of yourself and others. Do not share any personal health information about yourself or others. 
  2. Swearing, name calling or comments that are aggressive and assigning blame towards others are not welcome. Participants will be warned and then removed from the Zoom call.
  3. We invite you to take advantage of this online space for the purpose of sharing your insights, stories and suggestions for change, as well as your observations of where you saw good things happening in your care experience. We hope you will feel supported, heard and learn something from each other.
To share your lived experiences, come out to our next Advisory Zoom Chat or contact Sharon Osvald at sosvald@alzking.com or phone Mondays or Fridays at (343) 645-6240.

Email sosvald@alzking.com to register and to receive the Zoom link and info.