'Recommendations to enhance the use of personhood tools to improve clinical care across sectors' was created by the Behavioural Supports Ontario Lived Experience Advisory Members. The purpose of the Behavioural Supports Ontario (BSO) Lived Experience Advisory (LEA) is to unite individuals with lived experience across Ontario who share a common vision to improve care for older adults living with dementia, complex mental health, substance use and/or other neurological conditions and their families. To learn more about the Advisory or to join, please visit the Dementia Crossroads Website.

Upon the advisory’s inception, a priority goal surfaced to develop recommendations to enhance the use of personhood tools in different clinical care sectors (i.e., the “Personhood Tools Project”). Members voiced that when caring for someone living with one or more of the conditions listed under BSO’s target population, it is essential to remember them as people with their own values, interests, preferences and histories.  Information about someone’s personhood provides them with a voice regarding their care preferences and needs in cases where they may no longer be able to verbalize their wishes. 
 
The sharing of elements related to one’s personhood can also assist staff across all sectors in building relationships, providing personalized care, and developing care plans that are tailored to the individual. In the context of BSO, information about an individual’s personhood assists in identifying potential triggers and/or causes of responsive behaviours along with strategies to reduce their incidence and better support the individual through non-pharmacological interventions. The BSO LEA Members also suggest that leveraging personhood information in clinical care across sectors can reduce stigma, foster respect, increase safety, enhance empathy, promote care continuity, and improve the overall care experience. Ultimately, the members of the advisory saw how providing information related to one’s personhood could be a vehicle to improving the delivery of person and family-centered care while also emphasizing dignity across all sectors.
 
On this webpage, you will find the recommendations which you can download in PDF format. This page also includes web links to all of the Recommended Personhood Tools mentioned in the document as well as other related resources. If you have implemented one of these tools or another personhood tool in your organization, we would love to hear from you!  For more information about this initiative or to share how you use one or more of these tools, you can contact Sharon Osvald, BSO Lived Experience Facilitator at sosvald@alzking.com.  

Resources

Related Resources:

 

Links to recommended tools:

All tools are recommended to be completed by an individual who knows the person best, and, wherever possible, with the person that the tool describes. 
 
IN THE COMMUNITY AT ADULT DAY PROGRAMS AT THE HOSPITAL IN LONG-TERM CARE (LTC)
     
 
*Please note that a French Version & Indigenous-adapted Version of the P.I.EC.E.S. Of My Personhood Tool will soon be available.
Disclaimer: The tools recommended in this document are not inclusive of all personhood tools.